wolph33

I have it also tried many meds-none work.I live in constant pain-some days are worse-but have learned to deal with it.I would love to have an answer for something that really works also

Airwick156

I also have fibromyalgia. I take Lyrica and for me they are worth their weight in gold. Granted they are very expensive about $130 for 90 pills which is about $1.45 a capsule. But since I have been taking them, I have had way fewer flare ups then I was having. They also help tremenously on leg cramps. Also sometimes just a nice hot shower or bath will help.

Tink's Mom

Please let you daughter know that we understand...try to remove stress...be like a duck and let the water just roll off your back...a nap or rest in the middle of her day is almost mandatory...even 15 minutes. I try to lay down around 3:30 just so that I can rejuevenate before making dinner and all the rest of the stuff.
I can't take some of the meds...side affects.

amandasgramma

I, too, was diagnosed years ago. I control it by avoiding MSG (monosodium glutamate) and aspertame (the blue fake sugar). Before you say "we don't use it" -- please go to www.truthinlabeling.com and read up on it. I was shocked the places the crap is put in our foods, hair conditioners, etc. I was on the verge of going on disability when I discovered these additives aggrivate the symptoms. Since eliminating the additives, I am no longer in a wheelchair, have hiked, fished, gold panned...anything I want to do (except do the health walk -- I refuse ...LOL) Good luck!

ON EDIT: i just remembered...my doctor gave me a prescrip of Gabapentin. He said it was originally for seizures, but they've found it works on fibro/CF and for some mono problems. I have been diagnosed with mono last month --- this stuff is great!!! You all might talk to your doctor.

Riversong

I have it too. Very painful some days.Fatigue gets awful.STRESS is a bad thing!Even GOOD stress.I went to daughters for Natalies birthday party and just sat there for awhile. Next day I was exhausted and could barely move.I wish I had some advice,what works for one may not work for another.I do know LAUGHTER is good. This board is my medicine,and Ditter provides my daily dose of the giggles. God bless all of you afflicted with this nasty condition.I say,if you are a believer we all take a moment each day to pray for one another.Hugs to all(gentle ones !!)

kclausing

My grandson is in daycare, she works fulltime. Computer work. She used to have a second job, but just couldn't do it, was not getting enough rest.

kclausing

Thank you to you all and I wish you all a year of no pain, no stress, full of energy and love.

I will share your advice with my DD.

irishrose

I love my Magnesium Malate. Six a day during a flare and 2 a day for maintenance. I was diagnosed in 1983 - just added it to my too long list of autoimmune diseases. At this point, I am on no pharmacy meds other than a NSAID, but that may change when I see the Dr this month. I, too, avoid MSG and artificial sweeteners. They are poison for everyone, but more so for some of us. My dogs make sure I exercise every day. Great nap partners, too.

Tell your daughter she is not alone. There will be good days.

bluteddi

I too had difficultiy taking most of the prescribed meds.. ( I had a bad side effect left me legally blind for almost 2 yrs... I see well enough now with bifocals to read large print and drive) My life saver was Flaxseed oil.... rest..... and keeping on a a routine. The slightest thing out of my routine and my fibro goes into a tail spin!
Just a few more diagnosis and I'll have the entire alphabet!!FBS,CFS, RSD, EBS, IBS, DJD,

hugs ...

lynnie

Cymbalta helped for awhile, now if i turn my head right or left, even slightly, i go numb . it's to weird for me.