Has anyone here had this?

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Old 05-31-2011, 01:22 PM
  #41  
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My brother had this when he was very young, that was over 50 years ago. I remember he was in bed a lot, and everything hurt. Don't remember much else, except he was ill a long time and he eventually did get better. You know medicine today is so much more advanced. He had mild heart problems for a short time, but was still able to serve over 30 years in the US Army with 3 overseas tours. Prayers for a speedy recovery-
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Old 05-31-2011, 01:32 PM
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Dear Sooz- I'm sorry to hear of the issues you are facing. Perhaps I am off base but let me pose something to you. Some years ago I had an accute sinus infection. For months after treatment I couldn't make it from one room to the next without crawling and lying down. Eventually I had enough energy to get to the store for a refill on Synthroid for hypothyroidism. I asked the pharmastist if there had been a recall on synthroid because of the extreme fatigue. He looked in the system and asked how many of the steroids I'd taken to decrease the swelling of the sinuses. I told him the 10 days worth just like the doctor said- he said- Dear God woman it's amazing you're standing. Steroids take down the whole system and I should have only had 2 pills at the most So all that said- if they are giving her a steroid check with them. Also talk to your pharmastist. We have found over the years we get more help from them then the doctor- they know the meds much better.
If it hadn't been for a pharmastist we called to ask about a med given to my father-in law after a fall from a tree stand resulting in broken ribs- he would have died from a reaction between his liver meds and the pain killer had the pharmasist who was totally unrelated to his case hadn't caught the mistake by the doctor and the pharmacy that issued the med. Can also ask the pharmasist about meds that may be used so you can be armed when you see the doctor.
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Old 05-31-2011, 02:10 PM
  #43  
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I had it when I was 12 years old (that is 57 years ago so things were different back then) I had to stay in bed for a month, could only get up to go to the bathroom. It was summer time and all my friends and siblings were out having fun. No tv to watch so I read, read, read and listened to the radio. The DR came to my house every day( I told you things were different back then) and gave me a shot of penicillin(sp), the new wonder drug. I never did, thanks goodness, have heart trouble. The pain was all in my legs and all I had to take was asprin It didn't help much. Leg massages from my mom helped a lot & so did Grandma's chicken soup(I think it was the attention). Please let her know it is going to get better. My love and prayers go out to her.
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Old 05-31-2011, 02:41 PM
  #44  
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Read about Rheumatic fever on the Mayo clinic web site. They are always a good source.
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Old 05-31-2011, 02:57 PM
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I think the doctor may not have signed the school paper because he wanted her on full REST. He probably thought he didn't want her Stressing about her school work.
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Old 05-31-2011, 04:45 PM
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I had it when i was 12 yrs old....dr thought i was having growing pains til they ran some test after i passed out @ school. Sorry to hear your daughter has it and yes time will heal eventually. I have mitral valve prolaspe as a result and can't quite remember exactly how long the pain lasted but my legs really was so painful that it hurt to lay/sit still for a few minutes. Please get an 2nd opinion, couldn't hurt.
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Old 05-31-2011, 04:53 PM
  #47  
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Originally Posted by raynhamquilter
I think the doctor may not have signed the school paper because he wanted her on full REST. He probably thought he didn't want her Stressing about her school work.
Actually TWO different drs. said "school is almost out so it isn't worth bothering about." when I asked them to sign the papers for home hospital. There was 2 months of school left at that point. :x

We will do the internet High School. Utah has a great system and it is free and she can work at her own pace. I've signed her up now we just need to pick the classes. (I am working with the school counselor on this.)
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Old 05-31-2011, 04:54 PM
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Originally Posted by Pickle
Have you thought of a child cardologist? ( heart Dr.) I would think they would be good for a second opinion.I had rheumatic fever as a child but that was many years ago and it can affect the heart. What ever you do I would get a second opinion even if it is just for your own self to deal. I am going to be 77 this year so I survived my bout.
Hope this helps and doesn't scare you but if it was my baby I would want a second opinion.
Love and prayers. Pickle
It is a cardiologist that we are seeing. I've researched and he is doing exactly what is recommended in everything I've read online and off. I was just hoping to get a feel for how long this will take and if the pain will ever stop.
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Old 05-31-2011, 05:00 PM
  #49  
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Originally Posted by QuiltE
Originally Posted by mzsooz
Originally Posted by isnthatodd
Sorry to hear this. Have you done a google search?
Yes...everything is very simply explained. She is getting over the infection. Her strep antibody number went from 880 to 412 but she still has a ways to go. The CRP number also went down a little. I guess this all will just take time but I hate to see her suffer. She can barely get out of bed and this has been going on for 6 months!! She had to drop out of high school because of it. :cry:

I asked the cardiologist about going to a rheumatologist and he was ok with it but thought it wasn't needed. I just want my old Darcy back
Trust your instincts and accept the specialist's appointment. You need to advocate for your daughter. There's never anything wrong in getting a second opinion, to validate ... or to uncover further info regarding her condition.
Second opinion sounds like a good idea, diet could be worth considering as well, continue to seek help when you don't feel things are right, sometimes speaking out as you have here is where you will find the ultimate answer, I pray your help comes soon.
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Old 05-31-2011, 05:32 PM
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Sending prayers for rapid healing, and a peaceful heart for you and your daughter. It never hurts to get second opinions. I hope your doctor is a good, compassionate one, but remember that all doctors do not graduate in the top 50% of their class. God bless....
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